Sunday, June 7, 2015

What I keep telling myself

I keep telling myself how lucky we are, because although his ALS is moving fast, it's still a lot slower than a sudden death when we wouldn't get a chance to say goodbye.  So many people don't get the chance to say goodbye, and we do everyday.  We never know when it's going to be too much.  When he gets sick and his body can't handle it.  When his lungs stop working or he can no longer swallow.  He's supposed to get the tube inserted into his stomach in the next couple of weeks.  He's excited to put his medicine in that way, so he doesn't have to taste those rascals!  He's a lot mad at the list of things they told him to stop eating-white flour anything, white poultry meat, nuts...  Basically, most of my dad's favorite foods.  He said forget it, I'm dying anyway, I don't want to starve!  It won't be much longer before he can't eat, but no matter what he's not eating applesauce!  He really doesn't like applesauce!  My mom ordered a communication device for him that will track his eye movements (or something like that).  He's pretty excited about that!  My sister found a wheelchair bound clothing website, where his Father's Day gifts will be coming from!  It's so hard to buy for him!  I'm excited about this!

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